The Lamp Within the Body - “a nine part series on living faithfully inside complex health…”

Over the past weeks of intentional stillness, I’ve been able to chase new information about my health complexities. What I have learned, is that my body has been carrying more than I understood ~ more than my health specialists understood!

Thats all changing!

I now know that the moderate sleep apnea and REM atonia conditions that I live with have likely been quietly shaping my health for many years.

My specialist believes these disruptions may have contributed to the immune and neurodegenerative disease responses I’ve been navigating.

There is grief in that knowing ~ there is also frustration that this information hadn’t been picked up earlier.

But there is also clarity.

And clarity, even when tender, is a form of mercy.

What surprised me most was not simply the diagnosis but the affirmation. My specialist was genuinely curious about the creative, prayerful, art centered way I support my symptoms each and everyday of my life.

The very practices that grew out of survival and faith are now being recognised as wise.

That feels like a quiet victory.

So I am choosing something deliberate:

I will not let symptoms narrate my life for me.

I will not let this newest diagnosis be the loudest voice in the room.

I will continue to live proactively, creatively and even more faithfully within this body I have been given.

And so this nine part series will be about that.

Not triumph.

Not denial.

But stewardship.

Living well inside complexity.

Refusing to drown.

Learning to float with intention.

I hope you will walk with me as I take you along this new journey through the sacred art of simply being.